FloridaMadison How angry it can make me - I'm not usually an angry person, but sometimes I get really upset! And then I get upset for getting upset... it keeps going like that
[deleted] Hello! I'm curious...does anyone keep a journal or notebook to keep track of dates, events, appointments, doctor's reports (falls, eating/sleeping habits, scans, tests, hospital stays)???
MoniqueFrahm [deleted] Great question! I think everyone is different but what worked for me was a calendar! I had a big calendar up on my wall, where I would write important appointments/events. It had a "Notes" section on the side for any additional information that I wanted to remember. I would definitely recommend keeping track in some form - it gets very hard to juggle so many balls at once!
MomMySHero @"MoniqueFrahm"#p999 The lack of support from loved ones has been at the top of my list of surprises unfortunately
MoniqueFrahm MomMySHero I'm so sorry to hear that. Unfortunately, this is something a lot of caregivers experience. What are some ways that you manage it?
MomMySHero MoniqueFrahm I have learned this is a common issue for caregivers and it is so very sad but at least I now know I am NOT alone
MomMySHero MoniqueFrahm I was thinking of purchasing a daily planner especially since I manage both my mother's appointments as well as my non-verbal adult brother since my mom is unable to care for him now.
Scott It surprised me how different each case is..,different dementias..,different timelines. You can't compare someone else's dementia with your person's..,
MoniqueFrahm Scott This is such a great point. That's part of what makes it so hard. The unpredictability and unknown.
[deleted] Scott I've heard the saying "If you know a person with dementia, you know ONE person with dementia" because everyone's experience is so different.
[deleted] MomMySHero I used a basic spiral bound notebook when I was caregiving for my grandpa....I think I filled two notebooks in less than a year! It was not a fancy system, but it worked! I think a planner is a great idea!
MomMySHero MoniqueFrahm Yes, I've started doing that very thing, however, I miss sometimes when multitasking and juggling several things I've found I will forget to go back to add the notes/reminder to my phone... smh😔
