Are you going to our Positive Mindset Webinar? If you are...

Smokebear

My negative thought is more of an emotion. It takes forever like 20-45 minutes for mom to say/explain something. Like waiting for ketchup to drip out of a bottle or watching water boil. It can be agonizing for me to wait. If I try and help her explain she gets angry and starts all over again which takes even longer. I try to remind myself she’s close to the end years or less. I should try to enjoy this time that’s left. At times it’s physically painful though to wait for the full explanation. Other times she reminds me of a 3 year old with constant questions.

Quilter1

We are early in the process and I am already overwhelmed at having to make all of our decisions and having no one to bounce ideas off. His short term memory is gone, but cognitively there is much he can still do and do well (he is a pastor and continues to preach). I worry about everything. How am I ever going to do this when I read other scenarios? The other negative is I still have a lot of anger about our changed life,

geekgirl74

MoniqueFrahm I have a 10yo son with a congenital heart defect. He has severe intellectual disabilities. After having a stroke during recovery from open heart surgery when he was 3 1/2 years old he became weak in his left arm and leg, resulting in some mobility issues. He is nonverbal and needs assistance with most ADLs, but is a happy kid overall. I love my son, but sometimes I wonder why did he have to survive the stroke if it makes him so dependent on others? I think about this when I feel like he's a burden on my life.

MoniqueFrahm

Thank you all so much for your posts! I read every single one of them.

For people that are coming from the webinar, hello again!

Please use this space to write any questions, comments, insights, or thoughts.

And please feel free to reply to the above comments as well!

Evan-Mc

Not sure ift thsi is the chat! Just 'checking in' ...great webinar... 'reframing' is a strong and postive tool.

MoniqueFrahm

Evan-Mc Yes, it is! It is such a strong tool!

Evan-Mc

I have to do something quickly... thanks again for the great info Monique.

Quilter1

I came across this looking at another chat conversation. I think it fits in with being positive!

I recently came across this 12 Step Program for Caregivers by Carol J. Farran, DNSc, RN, and Eleanore Keane-Hagerty, MA.

Although I can't control the disease process, I need to remember I can control many aspects of how it affects me and my relatives.

I need to take care of myself so that I can continue doing the things that are most important.

I need to simplify my lifestyle so that I have time for what is important.

I need to cultivate the gift of allowing others to help me because caring for my relative is too big a job for me.

I need to take one day at a time.

I need to structure my day because a schedule is best for me and my relative.

I need to have a sense of humor.

I need to remember that my relative is not being difficult on purpose.

I need to focus on and enjoy what my relative still can do.

I need to depend upon relationships to support me.

I need to frequently remind myself that I am doing the best that I can at this moment.

I need to draw upon the Higher Power which I believe is available to me.

MoniqueFrahm

Quilter1 I LOVE these! Thank you so much for sharing!

Evan-Mc

Quilter1 ...these are good!

Evan-Mc

Quilter1 ...these are good!

Ginette

I just did and it was super helpful. Unfortunately, I wish I could copy some of the questions challenging the negative thoughts… do you have a hand out with a list of these questions to challenge the negative thoughts…

MoniqueFrahm

Ginette The slides will be available to download early next week, Ginette! If you have trouble, I can always send you them via email!

CareCoachDarci

I like to tell myself "I'll do the best that I can for as long as I can - and that is good enough".

Evan-Mc

The chat room is a little hidden... wasn't it called the 'forum' last year?

MoniqueFrahm

Evan-Mc It was - we thought Chat Room described it better! It will hopefully become less hidden as more people find out about it!

Evan-Mc

MoniqueFrahm ...good to see you and everyone today! I got a lot out of the webinar (though I missed the first half). I like the 'chat rooms' within the forum... it is good to connect with others! - Evan

MoniqueFrahm

Evan-Mc Thank you, Evan! See you then!

Evan-Mc

See everyone at the next one!

MoniqueFrahm

Thank you so much, everyone! I will see you at the next webinar!

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